Wednesday, 14 March 2018

1yr 43wks Post R2 - Cursed Sofa Part 3 - Life and Puppies

There is an acronym that's used sometimes in Text messages and on Internet forums
(I Swear You Couldn't Make This Shit Up)
This is the point I have now reached with the Sofa delivery - I'm writing it and even I can't quite believe that so much incompetence could be leveraged onto a single customer without forethought, planning and perhaps a need for sustained cruelty to the individual.

Sofa Delivery 'Act-3' was last Wednesday this is how it played out (please forgive the inelegant copy and past from last week's post) (and Yes I am now naming the furniture company involved)

  • Oak Furniture Land Delivery driver called to say he would arrive within the hour
  • Window fitter arrived to remove window
  • Delivery Driver called to say his Lorry wouldn't fit down the road (it was supposed to have been on an appropriately small vehicle like last time as per the order and emails to confirm this)
  • Delivery chaps pushed the Chaise part of the sofa down the lane on a big roller skate contraption
  • The incorrect 'sofa' part was removed through the gap where the window had been
  • The Chaise (note I'm not calling it the correct part) was inserted through the window Gap
  • Window fitter commences refitting the window
  • Drivers remove packaging from the Chaise
  • It's NOT the one I ordered
  • It's the right make, the right colour
  • It's one with the solid back cushions not the scatter cushion back that I ordered or it doesn't bloody match the sofa part
  • Because it's not the part I ordered even if the delivery drivers leave the large scatter cushions from the incorrect sofa part - it's still one large cushion short and looks rather odd (but they've left them here so whoever was due that 'sofa part' has no big cushions so thats another unhappy customer somewhere)
  • On a bright note the drivers did leave the 2 small cushions from the other chaise to try and fill the gap left by the incorrect number of large cushions
Back on the phone to them again trying to get this all sorted, my order is somewhere in the UK - but nobody seems to be able to tell me where. They're sending me the cushion (from the Chaise they can't find) this week by courier (because otherwise they can't guarantee it wouldn't turn up on a lorry again) The refund of the cost of getting the window removed and reinstalled (again) should hit my bank account this week, and I can keep the 2 small cushions the were left (because they can no longer reunite them with the chaise they took away - because they can't find that either - so there's another unhappy customer out there somewhere)

They've managed to arse up 3 customer orders in one go with this mess and a 8-12 week delivery lead time means I'm not the only one who's having an outright hissy - seriously they couldn't organise getting drunk in a pub with a free bar.

We had a lovely couple of nights out last week with Aunty Kathy while she was here, back to The Hand & Flowers in Marlow for one of them with fantastic food as always. The dogs all had a whale of a time at K9 chasing balls and each other and getting VERY muddy in the process.

In other news Bella is settling in well without too many puppy related accidents (and no further unprovoked incidents on defenceless plants) and she's definitely still growing - like a weed - she's going to be quite tall by the time she's done.

My hopeful news from last week didn't work out the way I'd hoped, but there is more on the horizon.

All things considered life is pretty awesome as always, the MonSter is contained and that's just what the Project Plan had scheduled.

I found a new blog today from someone having round 1 right now that I've found well written and made me smile - if you have a moment please take a read, it might help xxx

Monday, 5 March 2018

1y42wks post round 2 - Birthday / funeral / Cursed Sofa Part 2

To add some clarity to what will seem like a random post ….. this bit below was written last week but I didn’t post it.

I swear the successful delivery of the new sofa is cursed ……

It’s the journey of the damned and only heartbreak frustration and sorry lie down that pathway.

The reorganised delivery along with the ‘organised’ window fitter who was to remove the living room window so the sofa part could be slotted through and reinstall the window happened on Wednesday afternoon as organised.

·        The window man turned up and removed the window

·        The sofa turned up this time on an appropriately sized vehicle

·        The sofa fit through the window

·        The appropriately sized vehicle left

·        Window man reinstalled the living room window

Sounds great eh?

I should point out at this juncture the furniture company deliver but do NOT unpack

So the sofa parts remained in the packaging until the hole in the front of the house was plugged up so it wasn’t covered in snow …..

Upon unwrapping Gareth discovered that for the L shaped sofa rather than delivering the sofa part and the Chaise part along with the foot stool – they had delivered 2 sofa parts so it doesn’t actually fit together at all

I’m in WALES …. In a workshop and now I need to deal with this.

At this point I manage to insert every bad work I know into a single sentence – sometimes more than once.

Unlike last week, this time there was no crying while I spent 1 hour and 15 minutes being passed around from one customer service team to the next. Having used up all my swear words before they answered the phone I didn’t even say a bad word. By the time the manager was put on the phone to deal with the ‘difficult’ customer all that remained was cold fury with a side order of mean and vicious.

It’s quite extraordinary how helpful and quick they can be when they say it’s going to take a while to locate the missing part and reorganise the delivery and my response was:

‘That’s fine – it’s snowing out, I have 3 dogs and they all love coming in to sit on the sofa to warm up – the longer you leave it here the hairier, smellier and dirtier it’s going to be before you want to deliver it to the customer who actually ordered it’

There may also have been a ‘small threat’ that I was going to publicly post the delivery labels and photographs complete with comfortable dogs on their corporate twitter feed for the world to see (mean and vicious)

·        They’re coming Tuesday

·        They’re paying to have the window removed and refitted this time

·        They’re unwrapping the damn thing to prove it’s the correct part before they leave

In other news ‘Snowmageddon’ has reached the UK my drive to the south coast on Tuesday morning was unpleasant, coming back at lunchtime was more so as it had snowed some more. I then swapped cars and drove to Wales – more snow by now on teenie tiny twisty turny upy and downy hilly bits (sorry got carried away there)

The drive back out of Wales yesterday was in parts quite frankly terrifying in almost blizzard like conditions where you can’t see in front of yourself, or the lines on the road or even the edge of the road which blends in beautifully with the 100ft drop into a ravine because it’s all bloody white.

It was lovely to get home and sit on a sofa albeit not quite the configuration we ordered with the dogs and promptly ‘christen’ it by falling asleep on it 😊

Back in the office today, but out tomorrow for Arthur’s funeral

In other news it’s my birthday on Saturday,

Roll on the weekend – I need a rest

CLARITY point again – its now Monday, the weekend is over and what follows is the weekend update:

So in the clutches of ‘snowmageddon’ Arthurs funeral took place on Friday. Thinking about it logically I think he would have approved of the affair even though pretty much everything happened in ‘disaster recovery mode’

The minister was snowed in and couldn’t get there (cudos to the lady at the crem who stepped in at the last minute) 2 of his 4 daughters also couldn’t get there because of the snow. The service ended up being ‘facebook lived’ out to those who put safety first.

It wasn’t to plan, but we got the job done and gave him a good send off, not a dry eye in the house when Scott talked about what a great person he had been.

Saturday was my birthday, Gareth and I went for a lovely Argentine Steak meal at CAU in Reading and did things quietly, Aunty Kathy is coming on Tuesday for a couple of days and we’re off out for posh food Tuesday and Wednesday night at The Hand & Flowers and then The Royal Oak Paley St.

‘cursed sofa part 3’ happens on Tuesday – they found the chaise part, it’s coming along with the window fitter to remove and replace the window all over again.

The snow is now pretty much all gone apart from the back lane that we use to take the dogs to K9 for walkies.

I have an appointment at 09:30am on Wednesday morning at St Mary’s in London with the new Neurology team so I’m going to try to take the opportunity to visit with my old friends and colleagues at GT while I’m in the city, then a 13:30 meeting while I’m there too.

I’ve been invited out with the girls on Thursday too so we can celebrate that we were mostly all born in March – I’m going to be SOOOOO fat by Friday.

This week is potentially a big week in my life …. Stay tuned for more news next time 😊 xxx

Friday, 23 February 2018

1y40wks Post R2 - Puppies, Cursed Sofa Part 1 and blood results

Sorry for the late post this week, but it’s taken until today to get my full blood results back. Following on from lst months bloods once again I have ‘funky’ thyroid readings and now I need to go and see the doctor about them.

The other funky reading is starting to come back inline after many months but then I’ve never really worried about that one.

In non Lem news we have a new puppy and she’s adorable, so Winston-Dog and Amber-Dog have a sister who’s name is Bella – although after yesterday she may also have the nickname ‘Aloe Vera Plant Destroyer’ ….. she inflicted terrible damage on the poor innocent plant (the joys of puppies) fortunately not eating it more biting off all its limbs and randomly spitting them out around the kitchen diner

Bella is a German Pointer cross – the cross part possibly being a rather small whippet. She’s a rescue from Spaniel Phoenix Rehoming who are THE most amazing charity helping to bring dogs and puppies from shelters where they have kill policies into forever homes across the UK and sometimes around the world. Look them up on Facebook . they are amazing and run solely on donations so if you’re feeling generous a couple of pounds their way would be a great help xxx (sorry I know I don’t ever say things like that but I can’t help myself – I want to save them all but Gareth says NOOOOOOO)

I had a lovely afternoon tea over the weekend with a colleague from my former job, caught up, put the world to rights and generally did the ‘Ladies who lunch’ thing. Felt a bit of a scruff at the Hilton wearing trousers I’d just walked the dogs in so I had a few random dog paw marks on them but the time I’d allocated to get properly dressed for the occasion was suddenly consumed by the gentlemen coming to take away our old sofas in advance of the delivery of the new one - more about this in a moment - and just never had time to change so I felt a bit of a scruff but it was lovely to catch up with the beautiful Nour.


My best advice – MEASURE, MEASURE and MEASURE again – all of the sides Height, Width and Depth – in our case Height became very important 😊

Disaster number 1 was that it was delivered in an enormous truck despite our request that it some in something small or it wouldn’t fit down the lane. The 2 poor delivery guys had to put it on a flat ‘skate’ thing and push half thr sofa down nearly 200 meters of barely tarmacked road.

Disaster number 2 was that after it came through the front door and was rotated it became very quickly obvious that it wasn’t going to fit through the living room door – ever.

Cue phone calls to the supplier regarding returning it while we got a quote to have a window removed so the sofa could be put into the lounge through the hole and then the window reinstalled – of course it’s winter here, so the timing of this needs to be finely tuned and Oak Furniture land at the time of writing this haven’t yet confirmed time slots so I can share them with the lovely window man to see if he’s available.

In the interim Gareth and I have his grandparent’s chairs and foot stools in the lounge as our only places to sit

Oh and I’m away for 3 days next week with work so guess what I’m not going to be here to deal with it


Even I can’t project manage my way out of this one 😊

On a bright note HAPPY FRIDAY everyone, hope you’re all looking forward to an awesome weekend (assuming you have somewhere comfortable to sit and enjoy it of course LOL)

It’s all good – the MS is quiet and life is epic.

Anyway bloods – here you go xxx

Friday, 16 February 2018

1y39wks Post R2 - Apologies for the absence

I have to say it's been a difficult couple of weeks in 'real life' which seem to have reflected pretty evenly onto MS life.

Losing Arthur has hit so hard, the circumstances of it, rather than that he's gone have been very difficult to get my head around. I've had difficulty sleeping at night, but have no problem simply falling asleep in the evening in front of the television. Tiredness naturally means things like wonky legs, rubbish balance and random patches of numb appear and disappear when they feel like it.
The funeral is now planned for March 2nd (the day before my birthday :-( ...) these things take so very long to arrange when someone dies in circumstances like this, but at least we have time to plan and grieve.

In other news Amber dog has become quite 'zombie like' again on the KBR medication, so we are tweaking the dose a little to see if she comes out of it a little, it's really having an impact on her ability to 'hold it' and there have been some accidents. Having experienced something like this as a result of MS, I have no concerns about clean up, but it's really having an effect on her mentally when an accident happens, she knows and she hides here head and tries to sink into the floor - it breaks my heart to see her this way. But when she's out at the park, she's happy and bouncy and has the biggest smile - so we have to see how it goes and do the best we can for her - I've tweaked her schedule with the lady who comes in while we are out at work - fingers crossed it helps.

In the interim I'm playing with the NHS and the referral to the new Neurologist in the Berkshire area. The automated 'book your own referral system is a steaming tower of turd, after 3 weeks of trying to book online and getting 'there are no appointments' message I finally reverted to phone calls today. Having replicated my outcome using the password I was sent I have now been moved to the 'we will send a letter to your home' method - however they can't confirm if it will be the Neurologist requested who I'm going to end up on the list for ..... so that's another hurdle that needs to be crossed if it happens.

So the recipe for the week is sleep, sleep and more sleep I think and get get everything back in order.

I had my month 21 post Round 2 blood tests this morning and spectacularly failed to pee again so I'm trying to remember to fill a pot today so I can drop it in later on today.

All in all life is great MS wise, the other stuff will be okay

Much love xxx

Monday, 29 January 2018

Week whatever post R2 - Heartbroken and devastated again

I would put an update of what happened from last weeks post to the weekend, but I honestly can’t remember a thing about last week or what happened before Saturday morning. This is not MS, and no for regular readers, I wasn’t drunk or hung over.

On Saturday my world disintegrated into a million pieces for the 4th time. I had a message to call a mutual friend about my ‘acquired’ brother Arthur.

Athur has been part of my life for nearly 20 years, we met on my 2nd day in a new job when I inadvertently set off all the security alarms on the office firewalls by making a typo trying to load up the search engine (20 years ago remember – that was state of the art then) For those who haven’t accidentally typed …. Well I wouldn’t recommend doing this in the office ….. about 400 pop up windows opened with absolutely the most inappropriate images that should never be viewed on a piece of work equipment.

I was desperately trying to Alt-F4 the pop ups closed when he ran up the stairs to ‘catch the perv at it’ he crashed through the door behind me to find a red faced female in a full blown panic hitting the buttons faster than a kid playing the 100 meters in the ‘Daley Thompson’s Decathlon’ game sweating and swearing and mortified.

That was our introduction, me wanting the earth to open up and swallow me whole and him almost  wetting himself he was laughing so hard at my misfortune – it set the tone really, he loved to tease me and wind me up, getting me to blush and be speechless at the same time was like every badge of achievement rolled into one. He basically decided that I’d ‘Do’ as a little sister and that was just the way it would be, I never really had a choice in the matter.

He was there for me through umpteen relationship breakups before he finally pronounced that ‘Gareth wasn’t bad, he’d do’ Mostly I think because at the time Gareth was still in the Army so he had ‘forces points’ in his favour. It certainly meant at the end of the evening when it was ‘lasties’ time Gareth always got invited for the aged single malt with the ‘vets’ …… me …. Well I was relegated to ‘dinky’ status …. (army wife)

There is a lot we don’t know yet about what happened, I guess that will come in time with the coroners report / inquest results but he was found in the river on Saturday morning.

Once again my world is in a million pieces, my heart hurts so much that it hurts to breathe. I can’t wrap my head around how something like this could have happened to this magnificent, brilliant, brave, geeky, completely daft bugger.

I’ve spent a lot of time contacting people trying to get ahead of when he name is released, spoken to people all over the world, people I’ve not seen or spoken to in many years and I’ve cried so many tears.

Other stuff happened as well, Gareth’s parents came for the weekend and it was lovely to see them, I did Tomahawk for dinner – everyone loved it.

I don’t really know what else to say, it’s all gone horribly wrong.

Tuesday, 23 January 2018

1y 36wk's port R2 - January Blood Results

For those of a ‘certain age’ you might remember an old console game called ‘Worms Armageddon’ – completely silly but when the Worms won they did a little dance and all sang ‘SUCCESS’ – this pretty much sums up my feelings about not having to take another long road trip last week up to Blackpool 😊

The week after my last post became quiet and serene and much more sensible. (well as sensible as it gets in my world around a full-time job, the demands of the pets and of course my husband.

I saw my Doctor on Thursday and picked up prescriptions for some bits and bats that were running low, I also asked to be referred to a new Neurologist within the Berkshire team (I gave him the name of the one that I wanted to be referred to). After that the lovely Ron and a few more holes in me from the acupuncture needles to work on the Psoas muscle (next session is hopefully the last one as I’m pretty much mended now). Friday was ‘stabbing day’ and the one stab wonder Phlebotomist did her usual fantastic job at harvesting my blood, although despite sitting on the loo for an exceedingly long time I failed to pee and have yet to drop in a ‘sample’ to be sent off.

The weekend really was a whole lot of not doing much, a quick trip to get gassed at BMSTC Saturday lunch time and the weekly food shop and when a whole lot of just loafing around reading books and binge watching Blacklist, dog walks and recreating James Martins Shin of Beef Stew with dumplings – which was pretty epic if I do say so myself 😊

A couple of days in the office and tomorrow I’m off on the train to Manchester for a day trip. Apart from the odd trip into London with Gareth which doesn’t really count, I think its been 5 years since I took a proper train journey. £172 for a return journey is absolute bloody daylight robbery in my opinion – especially when it doesn’t involve anything to eat or drink and WiFi is an extra fee on top – absolute thievery – and also why public transport is never a preferred method of travel in the UK – it is just far too cost prohibitive. I could rent a hire car, fill it with fuel and book a night in a hotel for less than that

I’ll step right down off that soap box …

Poor Gareth gets the wonderful job of dropping me at the station for 06:00 tomorrow – he says he’s texted me to say he’s very excited about this – it’s amazing how text can convey such deep and damning sarcasm 😊

Ohh back to trains (briefly – I promise) by the power of Facebook it’s exactly 2 years today since I used a train – Gareth and I went into London to see Hangmen at the theatre and had the most amazing meal at Steak & Co before the show – we absolutely need to do this again soon.

So coming up …. Well lots of lovely plan free weekends that I can fill with loveliness, like a long weekend in Normandy, the afore mentioned trip into the city for lovely stone cooked steaks. I really just need to get round to sorting that out – and therein lies the problem when it comes to actually making plans like this the project manager disappears and the flaky bint replaces her, I forget (not MS just middle age blondeness) and things just don’t seem to get planned.

Must try harder 😊

And for your enjoyment here we go January blood results - time to check up on the scores on the doors that become so important to us all. TSH came back late and the doctors have the results but they're not allowed to read them down the phone to me until a doctor I've never seen has reviewed them LOL .... mini update tomorrow too I guess 😊

Happy week ladies and gentlemen xx

Wednesday, 17 January 2018

1y 35wks post R2 - road trips galore

A bit late posting this weeks update, I’ve been ‘oop Norf in Lancashire at a customer site with work and as usual couldn’t face trying to construct an update on an iPad.

I’ve done nearly 450 miles in the last couple of days in a hire car and the fix that Ron has done for me at BMSTC on the spasming psoas muscle is still holding – 28 days now without needing to use sticks to walk 😊

The lovely Nino came (he brought his Dad this time) and replaced all our broken down old fence last week with a beautiful new windproof one for those in the Reading / Berkshire area – I cannot recommend Woodley Fencing And Gardening Services highly enough 😊

The weekend was somewhat disrupted, the thing that I thought was ‘shaken free’ in Oxygen Therapy turned out to be a little viral infection which hung around all week. The trip to the doctor on Monday night was ‘interesting’ she asked what I ‘wanted’ – I think expecting me to just ask for a big dose of antibiotics or something, all I could say was ‘check me over and tell me if I ‘need’ anything other than the over the counter cold meds I’m taking …. Apparently, I’m a bit of an ‘odd duck’ in her experience of people with chronic illness in that I’m very anti medication unless I have no choice. Turned out I just needed a couple of days working from home on the comfy couch and lots of lovely LemSip Max to do the trick with it.

I had a couple of road trips over the weekend, one to see a friend of mine in hospital after an accident, and then a trip out to recover his car for him. Fortunately, he’s now sprung from hospital and life is getting back to normal.

MS wise everything is pleasantly ‘normal’ no symptoms, no problems – just the way a life as a Lemmie should be – boringly normal 😊

So plans for this week (what’s left of it) I ‘might’ have another road trip on Friday to Blackpool for work (and I’ve not yet managed to find a way to do it remotely – but I’m working on it 😊)

The rest of the week and the weekend currently looks blissfully clear of any commitment other than my usual dog walking times at K9 Pleasure Park and oxygen therapy at BMSTC (assuming they’ll let me in the building – the slightest look like you’re coughing or sniffling and they’re not terribly happy for you to be there in case you spread it around – reasonable enough in my opinion)

Thursday I’m at the doctors first thing to get some more migraine medication (I absolutely love that sumatriptan can sort a migraine out in 20 minutes, I’m also low on Co-Proxamol which honestly for severe pain is the only thing that works on me that doesn’t send me completely loopy) plus I want to talk about changing to a new Neurologist within the Berkshire area so I don’t have to deal with Hampshire and Southampton being so very rubbish.

Friday is ‘stabbing day’ time for my monthly blood and pee tests again, time to see how those lymphocytes are doing (could be a significant increase if infection fighting is still in progress – or a significant drop if it’s all done and they’ve all committed mass suicide again because their work is done) It will also show how if there is still something ‘funky’ going on with the Neutrophils which have been slowly rising for the last few months. Nobody else seems to be worried about them rising, so for now I’m not going to worry myself overly about it either despite foolishly googling possible causes of elevated Neutrophils.

That’s all for now folks, I will be back to wibble at you some more next week

Stay tough xx