Tuesday, 8 August 2017

1 year 10 weeks post R2 - fat birds shouldn't trampoline


Apologies for the week’s absence, real life certainly intervened in normal services.

The monsoon and leaky conservatory roof has meant that we’ve had to order a full on replacement for the conservatory. Unfortunately, just replacing the roof on top of the 15-year-old wooden structure wasn’t feasible as it wasn’t really possible to provide any meaningful warranty so we’ve had to bite the bullet.

I guess they say everything happens for a reason, the change of job means that at least we aren’t having to borrow to get the work done. ‘Play the glad game’ is a saying drummed into me my whole life by my parents. Rather than dwelling on what is negative / sad / disheartening to remind yourself of the things you are glad of or for.

So I’m glad that I’ve got an opportunity to have new adventures and experiences in new areas of work. I’m glad the pay-out will allow us not to borrow to fix the conservatory and convert it to a sun room with a real roof on it.

It has always been my motto – perhaps one of the reasons why I’m glad being diagnosed happened when it did – because I’m glad that it was at a time when I could fight back.

I took Boy to Gravity Force on Sunday …… A trampoline park …..

You’d think trampoline-ing – bouncing up and down in one place on something soft and squishy would be pretty much minimum effort and low impact. A few short minutes and my legs were jelly, my backside felt like Gareth Bale had been using it as a target for penalty kicks. I woke up yesterday morning and I didn’t hurt, I’d just seized up like old brake pads in need of some WD40 and good rub down with the sporting life (as my Dad used to say)

All I can say is I’m horrified about how out of shape I am – I must start to do something about that because walking the dogs just isn’t cutting it. Another project for me to plan and deliver along with finding a great role that will stretch my mind.

Another 10 days or so and its monthly blood test time again. With my Lymphocytes back in the low end of normal it feels quite odd that there’s a little voice in my head saying ‘I with the damn things would bugger off again’ life without them has been awesome and who needs a fully functioning immune system anyway – highly over-rated in my opinion.

Life is awesome, I now have a home office to work in with a nice desk and the MAC up and running and fully up to date thanks to Gareth …. (I can do it but would prefer not too - project manager – not desktop support LOL)

Once again apologies for missing a week of updates, this one isn’t really very long, but I’ll openly admit I’m also watching Animal Rescue Live on Channel 4 and I’ve had to stop a couple of times to go and get a tissue hearing some of these lovely animals stories (a boy surrendering his pet dog and a pair of bunny rabbits where one is blind and the other cares for it) I’m such a big soft baby watching animal thing.

So take care of yourselves and each other, much love from me xxx

Monday, 24 July 2017

1 year 2 months post round 2 blood results.

Here we go ladies and gentlemen


Blood results time, I'm guessing that last month's lymphocyte reading was quite likely to have been a blip / typo because they're creeping up in the low end of normal now.


The naughty thyroid is behaving beautifully again this month and life remains lovely and MS free.


Wednesday, 19 July 2017

1 year 9 weeks post round 2 - Monsoon and job hunting


Apologies that I’m late this week, after last weeks’ news my life has taken yet another ‘Crazy Ivan’ to steal the line from The Hunt For Red October – or just a weird turn for those not familiar with the classic film / book
So I’m officially looking for new roles and haven’t quite got round to creating myself a Microsoft Project Plan called ‘Project Get a Job’ …. Sadly, I genuinely have considered doing one. I’ve updated my LinkedIn Profile and my CV (resume) touched base with a few former colleagues to get a feel for what is available right now.
These things happen in the industry, they’re not personal so to me it’s an opportunity to try exciting new things, learn new things and make new relationships. The old saying ‘a change is as good as a rest’ is at the front of my mind, a new challenge really does give an opportunity to breathe new life into yourself and what you do.
We had a nice relaxing weekend and enjoyed some sunshine with the dogs and just talked about our plans for the next few months. I’ve also sorted out cat sitting for the coming weekend as we will be off ‘oop Norf’ to visit with Gareth’s family. Gareth and his Dad will be undertaking ‘build your own PC from scratch - Part Deux’ which doesn’t terrify me quite so much since when they did Gareth’s the weekend before last it was a very civilised affair (unlike when Gareth built the machine originally which was a hot sweaty angry and sweary event which I vowed I would never to allow happen again in our home)
We had monsoon season again yesterday evening again here, the conservatory roof is leaking round the seals on the glass panels (looks like that redundancy payment might already be a little ‘pre-allocated’)
Winston needed a trip to the vets because he got stung on the foot last night so anti histamine and steroids for the pup …. Had to laugh he’s had 2/3rds of a day of Lemtrada meds :-)
As I’m sure those reading are finding incredibly tedious - I’m doing really great MS’wise no stress blip, just carrying on as normal nothing exciting to report.
And to be factually correct I really am going for my monthly bloods on Friday morning so next week we should have the next instalment of ‘where oh where did my lymphocytes go’ LOL
Take care of yourselves and each other, virtual hugs and mentally projected Anti-Bacterial force fields to you all.

Thursday, 13 July 2017

Thursday part 3

If you're just tuning in for this weeks instalment of my strange like stop reading now and read the post above or I'm going to sound like I've completely lost the plot 😂😂

I'm posting from my iPad, I have a bottle of wine that I'm going to make a sizeable dent in and I'm doing okay.

I left work immediately after my news and came home, did the usual, checked my linked in profile was up to date, checked some local employers for roles, had a lovely chat with Lynn about some roles that she has and it's going to be okay.

I've been personally recommended to 3 other companies who have vacancies directly to the hiring managers so the race is on. Now the big question on my mind is what comes first August 31st when I will be unemployed ..... or me having a new role, setting up my own company again and negotiating with the current lot if I can use up some of the massive 160 hours of annual leave i have to make an early escape 😎😎😎

Oh and to make me feel better BamBam cat brought me home a dead bird as a gift and presented it at my feet 😂😂😂😂

Much love xxx

1 year 8 weeks post round 2 - Bugger


1 year 8 weeks post round 2 – This is all going to read as a little fractured, simply because it’s been written in bits over the last 4 days …. Apologies, the reason for it will become clear ….

Written on Monday 10th

Last week was a whirlwind of BBQ’s a visit from the outlaws (in-laws) and the first annual trip to the Pot Kiln in Yattendon for proper kiln fired pizza.

There were FAR too many late nights, my wine consumption exceeded what it should be. All things considered it was really fortunate that I managed to get my weekly oxygen therapy session in because had I not done so I suspect I’d have been pretty much flat on my back right now.

Pizza Sunday with Mr and Mrs Chappers was lovely, although because we’d taken the dogs with us it had its ‘challenges’ shall we say :-) For the first time Pizza Sunday history we did NOT discuss the plans for the impending Zombie apocalypse and our roles. Nor did we discuss politics or anything contentious … we just enjoyed the company and had a laugh. It’s just the practice run for the big Pizza Sunday when all the others are also available and not playing County Pool games.

Written on Tuesday 11th

Miracle of miracles, by the end of today our stairs at home should finally be finished. The 1-day job to lay the Amtico has been randomly split into 3 days in 2-3.5 hour chunks as a result of piss poor planning by the flooring company (the chap doing the flooring is lovely and bless him the convenience of thrashing the closest object means that the customers take their frustration out on him – not me – but some of the other customers – I just ring the office and use words like incompetent and business feedback with the schedule planner)

Written in the morning Wednesday 12th

So the stairs are still an ongoing thing, today is the last day and then they will be beautiful, safe and future proofed.

Written in the afternoon Wednesday 12th

Today has pretty much taken a sinister turn, after typing the above this morning I got 2 meeting invites in quick succession for ‘Organisational announcement’ one for Friday and one for tomorrow. Upon closer inspection tomorrow’s is at HQ with the big boss on my own ……. I suspect redundancies are in the offing, and I’m on the list ….. I’m really not entirely sure how I feel about that, there’s a little ‘FML’ in there, but there is also a little ‘reasons to be cheerful’ in there too. It wouldn’t be absolutely catastrophic but then it’s also not ideal, I do like to go on my own terms. I guess all will be answered at 10:45 tomorrow morning.

Written today Thursday 13th

Suspicions confirmed … it’s official I’m being made redundant, all of a sudden there are a million questions going round in my head, it’s all a bit ‘soup-y’ up there to be honest, a bit of a hurricane vortex thing going on and strangely the first thing I’ve decided to do is finish the blog update – perhaps the writing it down will help clarify the situation in my head while the (soon to be newly unemployed project manager) puts a project plan together the manage the situation.

On other related news monthly blood extraction tomorrow – I wonder what stress will do to that ……. I wonder if those missing lymphocytes will have returned, with the thyroid be behaving or on the frisk ?

BUGGER :-(

 

Tuesday, 4 July 2017

1year 7 weeks post round 2 – when shapewear goes wrong – kinda


Well it’s that time of year when having failed to miraculously lose a couple of stone without actually applying myself properly to the challenge that I invest in ‘shapewear’ to squish everything straight so the lumpy bumpy bits aren’t quite so obvious. To be fair the long vest tops I’ve invested in are awesome, muffin top squished ruthlessly into place and the squidgy belly has the same treatment. I don’t even feel too ‘compressed’ and it’s light and breathable. But they’re vest tops – I look like I’m going to the gym or for a run – which I absolutely am not doing under any circumstances. This necessitates the wearing of things like lacy tops over the squish wear to make it a little more socially acceptable in the office.

Could be worst though – at least they’re comfortable and pretty colours.

I had a lovely session with the lovely Margaret last Friday, we talked about how MS free life is these days and how the blog is going – have I mentioned that there have been over 100,000 views of this worldwide since I started it??? EEEK thank you all for reading and sharing, I hope that it’s helped / helping with your choices and treatment or just makes you feel sane in this strange world of MS symptoms that your life is far more normal than this middle aged mad woman.

The dogs have had a lovely week with lots of shared walkies with Kirsty’s dog Jake and next door’s do Rocky. They also how have the run of the house while we are out, the lounge is no longer out of bounds during the daytime and Winston seems far happier to let us leave without having a neurotic meltdown. I’ve also invested in the doggie equivalent of ‘Calms’ to see if that would help but it’s a little early to say if they’re working …. They’re not ones that make them drowsy and so far they’ve not become zombie dogs so I’ll let you know how that goes.

I’m feeling awesome MS wise (what MS) and thoroughly enjoying life – long may it continue, thank you Lemtrada

Tuesday, 27 June 2017

1Y & 6 Wks post R2 - Sunshine, BBQ's and my Super Powered Big Toe


Well it’s 6 weeks into year 3 and Britain has been having what by British weather standards is a heatwave. We’ve reached the lofty heights if 34 degrees celecius which is unheard of in the middle of summer let alone late spring

There’s nothing British people love more than a really big moan about the weather being too hot / too cold / too unreliable / badly timed etc – preferably over a nice cup of tea and a biscuit :-)

Personally I’m loving the heat (despite being ginger) – I suspect that I might be part lizard because I really do love the heat (very strange for a person with MS to say that I know) I have even built on the pitiful attempt at a tan that I got in Portugal and have not returned to my natural pale and spiteful state (apart from the bit of my legs between my knees and ankles which remains frighteningly white)

Toe update – I’ve had about a bazillion Arnica tablets this week with extra Tumeric supplements and to be honest it looks like a toe again instead of a big nasty purple lumpy mess. It’s still quite ‘tender’ to the touch and I’m walking a little gimpy but I’m  ready to declare the break healed as I I was able to wear shoes again on Saturday morning – So big toe now wins the fastest healing bone competition with 8 days.

Gareth and I have now not used the oven at home for 5 days thanks to the beautiful weather – the BBQ has been in daily use with a variety of lovely dishes with epic salads to accompany them. We’ve had piri piri chiecken, greek lamb, steaks which were all lovely and one rather dodgy shop bought burger which mostly went into the dogs (who didn’t seem to mind it so much)

So this last week with the Norovirus / broken toe situation has also been what I refer to as ‘Hell Week’ it starts on the Sunday with Fathers Day, is swiftly followed y what would have been my Mum’s birthday and then rounds out with the anniversary of Ian’s funeral. Just on the off chance I was unaware of the timing, Facebook reminds me of each of these things in turn. It’s been okay this year – not ‘all right’ because it’s never going to be that, but on the sliding scale of how I’ve been for the last few years, it’s been okay. I miss them all something fierce and it hurts my heart, but I’m not falling apart this year so that’s okay.

I’ve got my bi-annual appointment with the lovely Margaret – my MS nurse on Friday for my ‘so how’s life without all that MS nonsense bothering you’ review. My only moan will be that despite everyone’s best efforts getting me onto an annual smear schedule still seems to be somewhat more difficult to achieve than organising world peace.

I had a quick chat with Margaret regarding the freaky blood results, we’re neither of us concerned and just waiting for next months bloods to see what is the state of play whilst celebrating the thyroid behaving itself again (I miss asparagus, cabbage, green beans and broccolini SOOOO much but they’re the common denominator in funky thyroid behaviour so they’re consigned to the back seat in very small quantities).

We have training this weekend for the volunteering that we do and some friends of Gareth’s coming for dinner (another BBQ methinks) then I’m probably going to duck out on the Work BBQ thing in Sunday for Gareth’s company, it’s too far away and too long to leave the dogs alone (plus Gareth is staying the night in Bath as he has a meeting first thing on Monday morning).

So all quiet on the MS front, and just he way I like it. I’m actually looking forward to the next month’s bloods (wishing the time away to get to them – yup I’m weird) but I’m really interested to see what happens to the lymphocytes – will they slowly start rebuilding (I hope so ….. life with a serious shortage of thie little buggers has been so much simpler) or will they rematerialise (like the TARDIS)  back to their previous levels – BOOO) :-(

My world as always remains very strange but very lovely xxx